What Are the Common Myths About Dementia (And Why They’re So Harmful)?
Dementia is one of those conditions we often hear about, but not truly understand. In fact, it’s one of the most misunderstood health challenges of our time. Over 500,000 Canadians live with some form of dementia, yet many people still view it through a fog of myths and stereotypes.
The truth is, dementia is as diverse as the individuals who live with it, and how we talk about it matters. In this Alzheimer’s Awareness Month, it’s time to break down the barriers of misinformation and replace them with empathy, respect, and understanding.
It’s easy to fall into the trap of assumptions about dementia—what it looks like, how it progresses, or who it affects—but these assumptions only contribute to the stigma. Let’s take a moment to confront the most common myths that keep people in the dark about dementia.
Myth 1: People with dementia can’t make decisions.
One of the biggest misconceptions about dementia is that once diagnosed, a person loses all ability to make decisions. People often assume that someone with dementia can’t have input into their care, preferences, or lifestyle choices. But that’s simply not true.
In reality, people living with dementia can make decisions, especially when they’re given the right support and guidance. It’s about understanding their abilities and adapting the approach accordingly. For instance, if you’re a caregiver, offering a few choices can empower the individual to take part in decisions—whether it’s choosing between two activities, meals, or even daily routines.
When decisions are simplified, people living with dementia can actively engage in their lives, giving them a sense of control and dignity. After all, everyone deserves to have a say in their own care, no matter what stage of life they’re in.
Myth 2: People with dementia can’t learn new things.
This myth holds that once someone is diagnosed with dementia, they can no longer learn, adapt, or grow. While it’s true that dementia impacts cognitive function, that doesn’t mean the individual stops evolving.
In fact, many people with dementia find joy and satisfaction in new experiences and activities. It could be something as simple as learning how to use a new piece of technology, discovering a new hobby, or even revisiting something from their past in a new way. Memory may fade, but creativity, emotional intelligence, and personal growth don’t have to.
So why is this myth so dangerous? Because it leads to underestimating someone’s potential. We often assume that a person with dementia is no longer capable of achieving new things, and so we stop providing opportunities. This deprives them of the chance to surprise us, and themselves, with new skills and insights.
Myth 3: People with dementia are like children.
This myth is not only harmful, but it’s also deeply disrespectful. The idea that people with dementia are “like children” implies that they are unable to make decisions, communicate, or contribute meaningfully to the world around them. But this simply isn’t true.
People with dementia may experience cognitive challenges, but they are not “infants” or “toddlers” at heart. They are adults with decades of life experience, and they deserve to be treated with the same respect as anyone else. This myth often leads to degrading behaviours, like speaking to someone with dementia in a superior tone or dismissing their preferences.
It’s important to remember that they still have a lifetime of wisdom and experience. By treating them like adults and respecting their autonomy, we not only preserve their dignity but also open the door for them to contribute in meaningful ways.
Myth 4: People with dementia are fading away.
One of the most heart-breaking myths is that once someone is diagnosed with dementia, they begin to “fade away.” This paints a picture of someone who is slowly disappearing, becoming a shell of who they once were.
In reality, people living with dementia continue to live full, rich lives—they simply experience the world in a different way. Yes, there may be challenges with memory or communication, but that doesn’t mean the person is gone. Many people with dementia continue to enjoy activities like music, art, and social interaction. Some even develop new talents and hobbies as they adapt.
In fact, studies show that people with dementia can often connect more deeply with music, smells, or art that hold emotional significance. This kind of engagement can be incredibly fulfilling, both for the person living with dementia and for those around them.
Myth 5: Dementia only affects memory.
Many people still think dementia is just about memory loss. While memory is often the most noticeable symptom, dementia actually affects many areas of functioning—communication, reasoning, motor skills, emotional regulation, and even physical coordination.
For example, someone with dementia might struggle to express themselves verbally but could still communicate effectively through gestures, facial expressions, or body language. They may have difficulty remembering specific details, but their emotional responses to situations remain intact.
By focusing only on memory, we miss out on the other important ways in which people living with dementia experience and contribute to the world. To truly support someone with dementia, we need to broaden our understanding of how it affects all aspects of life—not just memory.
Why Do These Myths Matter?
The myths surrounding dementia have real consequences for both individuals living with the condition and their caregivers. When we buy into these misconceptions, we limit the possibilities for meaningful interactions, effective care, and positive life experiences.
These beliefs lead to isolation, disempowerment, and missed opportunities for connection. People with dementia are often treated as though they’ve lost their value, rather than as individuals who continue to have worth, agency, and dignity.
The truth is that we can do better. By challenging these myths and changing our approach to dementia, we open up new possibilities for those living with the condition. We can create a world where people with dementia are valued for who they are—where they can continue to participate, learn, grow, and connect.
Changing the Conversation About Dementia
Dementia isn’t a condition that should be feared or misunderstood. It’s a challenge that many families face, but it’s also an opportunity for growth, connection, and understanding. By recognizing the myths surrounding dementia, we can begin to shift the narrative from one of loss and limitation to one of empowerment and possibility.
This Alzheimer’s Awareness Month, let’s start conversations that truly reflect the dignity and potential of people living with dementia. Let’s challenge ourselves to see the person, not just the condition.
If you know someone living with dementia, reach out. Listen to their stories, learn about their needs, and support them in ways that honor their autonomy and experiences. Dementia might change the way we communicate or connect, but it doesn’t take away the essential humanity of the person living with it.
It’s time to stop seeing dementia through the lens of myths. Let’s see it for what it really is: a condition that affects individuals in deeply personal ways, and one that calls for understanding, respect, and support.
Additional Resources:
For those interested in exploring further, here are some valuable resources related to dementia.
- Paul Lea’s Website – Insights and experiences from Paul Lea.
- Dr. Allen Power of Research Institute for Aging – Research and perspectives on aging and dementia.
- By Us For Us Guides – Practical tips and strategies from people living with dementia and their care partners.
- In the Moment – A resource for family members supporting loved ones with dementia.
- Christine Bryden’s Website – Christine Bryden’s journey and insights on living well with dementia.
- Alzheimer Society Landmark Study Report 2 – Comprehensive research on dementia in Canada.
- Dementia Action Alliance: Calling All Voices Project – Includes podcasts and white papers on diverse perspectives in dementia care.
Concerned about your loved one’s brain health? Let us help. Call (647) 771.2273 today to speak with our caring team and get the support you deserve.